    ,  
  


   ,   ,        ,        .  , -,        ,  ,          .     Carlo Castellani  Harry Heijerman        .   ,   ,  ,    ,            .,    ,            .  ,         ,   ,   ,     ,  ,   . ( ,    )





   (European Cystic Fibrosis Society)

    ,  





 


Carlo Albera, MS

Clinical and Biological Sciences Department, San Luigi Gonzaga Medical School University of Turin, University Hospital San Luigi Gonzaga, Orbassano, Italy

Adrianne N. Alpern, MS

Department of Psychology, University of Miami, Coral Gables, USA

Laura S. Blackwell, MA

Department of Psychology, University of Miami, Coral Gables, USA

Mandy Bryon, PhD

Paediatric Psychology and Play Services, Great Ormond Street Hospital, London, UK

Carlo Castellani, MD

Cystic Fibrosis Center, Ospedale Civile Maggiore, Verona, Italy

Jane . Davies, MB ChB, MRCP MRCPCH, MD

Reader & Honorary Consultant, Departments of Paediatric Respiratory Medicine and Gene Therapy, Imperial College, London, UK

Andrew S. Day, MD

Department of Paediatrics, University of Otago, Christchurch, New Zealand

Jasbir Dhaliwal, MBBS

Department of Gastroenterology, Sydney Children's Hospital Randwick, Sydney, Australia

Jane de Vries

Cystic Fibrosis Nurse, Cystic Fibrosis Center, Department of Pulmonary Diseases, Haga Teaching Hospital, The Hague, The Netherlands

Stuart Elborn, MD FRCP

Director, Center for Infection and Immunity, Queen's University, Belfast, UK

Alessia Grande, PsyD

Adult Cystic Fibrosis Center Orbassano-Torino, University Hospital San Luigi Gonzaga, Orbassano, Italy

Trudy Havermans, PhD

Cystic Fibrosis Team, University Hospital Leuven, Leuven, Belgium

Harry Heijerman, MD, PhD

Department of Pulmonology, Haga Teaching Hospital, The Hague, The Netherlands

Barbara Messore, MD

Adult Cystic Fibrosis Center Orbassano-Torino, University Hospital San Luigi Gonzaga, Orbassano, Italy

Jacquelien J. Noordhoek, MA MSc

Dutch Cystic Fibrosis Foundation, Baarn, The Netherlands

Chee Y Ooi, MBBS

Department of Gastroenterology, Sydney Children's Hospital Randwick and School of Women's and Children's Health, Faculty of Medicine, University of New South Wales, Sydney, Australia

Sandra Perobelli, PhD

Cystic Fibrosis Center, Azienda Ospedaliero-Universitaria, Verona, Italy

Alexandra L. Quittner, PhD

Department of Psychology, University of Miami, Coral Gables, USA

Susan M. Sawyer, MBBS MD FRACP FSAHM

Director, Centre for Adolescent Health, Royal Children's Hospital; Chair of Adolescent Health, Department of Paediatrics, The University of Melbourne; and Research Fellow, Murdoch Childrens Research Institute, Parkville, Victoria, Australia

Giorgio Scagliotti, MD

Clinical and Biological Sciences Department, San Luigi Gonzaga Medical School University of Turin, University Hospital San Luigi Gonzaga, Orbassano, Italy

Donald R. VanDevanter, PhD

Department of Pediatrics, Case Western Reserve University School of Medicine, Edgewood, Washington, USA

Sonia Volpi, MD

Cystic Fibrosis Center, Azienda Ospedaliero-Universitaria, Verona, Italy







          ,   ,    Highfield Communication Consultancy (Oxford, UK)  .1. Group GmbH (Berlin, Germany)    .

 : Sarah Young, European Cystic Fibrosis Society.







砖  ,   ,         ,        .  , -,        ,  ,           .     Carlo Castellani  Harry Heijerman             .     ,   ,   ,   ,   ,    ,  ,      .

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Stuart Elborn,    




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Susan M. Sawyer MBBS MD FRACP FSAHM

Centre for Adolescent Health, Royal Children's Hospital, Parkville, Victoria, Australia



:

Susan M. Sawyer, MBBS MD FRACP FSAHM

Centre for Adolescent Health

Royal Children's Hospital

50 Flemington Rd

Parkville

Victoria 3052

Australia

Tel: +61-3-93456457

Fax: +61-3-93456502

E-mail: susan.sawyer@rch.org.au (mailto:susan.sawyer@rch.org.au)




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notes








1


Sawyer SM, Afifi RA, Bearinger LH et al. Adolescence: afoundation of future health. Lancet 2012;379:1630-40




2


Miauton L, Narring F, Michaud PA. Chronic illness, lifestyle and emotional health in adolescence: results of a cross-sectional survey on the health of 15-20-year-olds in Switzerland. Eur J Pediatrics 2003;162:682-9




3


Sawyer SM, Drew S, Yeo M, Britto M. Adolescents with a chronic condition: challenges living, challenges treating. Lancet 2007;369:1481-9




4


Sawyer SM, Afifi RA, Bearinger LH et al. Adolescence: afoundation of future health. Lancet 2012;379:1630-40




5


Sawyer SM, Afifi RA, Bearinger LH et al. Adolescence: afoundation of future health. Lancet 2012;379:1630-40




6


Patton GC, Coffey C, Sawyer SM et al. Global patterns of mortality in young people: asystematic analysis of population health data. Lancet 2009;374:881-92




7


Gore FM, Bloem PJN, Patton GC et al. Global burden of disease in young people aged 10-24 years: asystematic analysis. Lancet 2011;377:2093-102




8


Viner RM, Coffey C, Mather  et al. 50-year mortality trends in children and young people: astudy of 50 low-income, middle-income, and high-income countries. Lancet 2011;377:1162-74




9


Sawyer SM, Afifi RA, Bearinger LH et al. Adolescence: afoundation of future health. Lancet 2012;379:1630-40




10


Patton GC, Viner R. Pubertal transitions in health. Lancet 2007; 369:1130-9




11


Giedd JN, Blumenthal J, Jeffries NO et al. Brain development during childhood and adolescence: alongitudinal MRI study. Nat Neurosci 1999;2:861-3




12


Blakemore S-J, Burnett S, Dahl RE. The role of puberty in the developing adolescent brain. Hum Brain Mapp 2010;31:926-33




13


Blakemore S-J, Burnett S, Dahl RE. The role of puberty in the developing adolescent brain. Hum Brain Mapp 2010;31:926-33




14


Casey BJ, Getz S, Galvan A. The adolescent brain. Dev Rev 2008; 28:62-77




15


Steinberg L. A social neuroscience perspective on adolescent risk taking. Dev Rev 2008;28:78-106




16


Steinberg L. A social neuroscience perspective on adolescent risk taking. Dev Rev 2008;28:78-106




17


Martin CA, Kelly TH, Rayens MK et al. Sensation seeking, puberty, and nicotine, alcohol, and marijuana use in adolescence. J Am Acad Child Adolesc Psychiatry 2002;41:1495-502




18


Sawyer SM, Afifi RA, Bearinger LH et al. Adolescence: afoundation of future health. Lancet 2012;379:1630-40




19


Kessler RC, Berglund P, Dernier O, Jin R, Merikangas KR. Lifetime prevalence and age-of-onset distributions of DSM-IV disorders in the National Comorbidity Survey replication. Arch Gen Psychiatry 2005;62:593-602




20


Rutter M. Pathways from childhood to adult life. J Child Psychol Psychiatry 1989;30:23-51




21


Catalano RF, Fagan AA, Gavin LE et al. Adolescent health: application of the prevention science research base. Lancet 2012;379:1653-64




22


Patton GC, Bond L, Carlin JB et al. Promoting social inclusion in schools: agroup-randomized trial of effects on student health risk behavior and well-being. Am J Pub Health 2006;96:1582-7




23


Litt DM, Stock ML. Adolescent alcohol-related risk cognitions: the roles of social norms and social networking sites. Psychol Addict Behav 2011;25:708-13




24


McPherson M, Arango P Fox H. A new definition of children with special health care needs. Pediatrics 1998;102:137-10




25


Bethell CD, Read D, Stein RE, Blumberg SJ, Wells N, Newacheck PW. Identifying children with special health care needs: development and evaluation of a short screening tool. Ambul Pediatr 2002;2:38-48




26


Sawyer SM, Drew S, Yeo M, Britto M. Adolescents with a chronic condition: challenges living, challenges treating. Lancet 2007;369:1481-9




27


Sawyer SM, Drew S, Yeo M, Britto M. Adolescents with a chronic condition: challenges living, challenges treating. Lancet 2007;369:1481-9




28


Sawyer SM, Drew S, Yeo M, Britto M. Adolescents with a chronic condition: challenges living, challenges treating. Lancet 2007;369:1481-9




29


McPherson M, Arango P Fox H. A new definition of children with special health care needs. Pediatrics 1998;102:137-10




30


Bethell CD, Read D, Stein RE, Blumberg SJ, Wells N, Newacheck PW. Identifying children with special health care needs: development and evaluation of a short screening tool. Ambul Pediatr 2002;2:38-48




31


Olsson CA, Boyce M, Toumbourou JW, Sawyer SM. The role of peer support in facilitating psychosocial adjustment to chronic illness in adolescence. Clin Child Psychol Psychiatry 2005;10:78-87




32


Suris J-C, Michaud P-A, Akre C, Sawyer SM. Health risk behaviours in adolescents with chronic conditions. Pediatrics 2008;122: e1113-18




33


Sawyer SM, Drew S, Duncan R. Adolescents with chronic disease: the double whammy. Aust Fam Physician 2007;36:2-6




34


Sanci LA, Sawyer SM, Kang M, Haller-Hester D, Patton GC. Confidential health care for adolescents: reconciling clinical evidence with family values. Med J Aust 2005;183:410-14




35


Duncan RE, Vandeleur M, Derks A, Sawyer S. Confidentiality with adolescents: what do parents think? J Adolesc Health 2011 ;49:428-30




36


World Health Organization. Adolescent friendly health services an agenda for change. Geneva: World Health Organization, 2002


